All photos Holly Wren Photography
Hi Lovely Readers,
This is a break from my usual letter posts to Cath so that you can take a gander at some professional photos of my mug and learn some more about endometriosis!!! (Discussing chronic disease is proven to be more fun with exclamation points!!!)
Long-time readers know that I have endometriosis and this year has been a challenging one. I’ve been in the hospital twice in the span of eight months. The first stay was an emergency where I was in a lot of pain and still suffer from flash-backs from such a scary and bewildering time.
Having a chronic illness is an immense challenge for so many reasons: the pain, the isolation, the fear, the frustration, a sense of being trapped by your own body. Part of the frustration and fear of having endometriosis specifically is that so little is known about it. Nearly every doctors visit I have, I feel so frustrated and scared because I know more about my endo than they do.
So that’s why you will see me blab about it as often as possible here on AsianCajuns. The more people (doctors and lay people, alike) know about the disease, the better. More knowledge means fewer misdiagnoses and less stigma against talking about women’s health.
This winter I got to work with amazingly talented photographer Holly Wren who is volunteering her time for Endometriosis UK; taking photos of women around the UK who suffer from endometriosis. Endometriosis UK then share our stories and portraits on their site. You can read my surgery story here.
I’m also hopeful that my story will help women suffering with endo and looking for answers like I was. Because doctors visits were so frustrating, I turned to the internet to read about what other women were dealing with, and it was immense comfort to read their stories and know that I wasn’t alone.
For those of you who would like to know more about endo in general, you can read a quick blurb about what endometriosis is here. And if you’d like to read more about my personal journey with endo you can click “Endometriosis” in our blog categories in the right-hand column or click here.
Thank you, readers, for listening to all this. I know talking about chronic pain is not nearly as much fun as Scottish castles or sustainable style, but it means so much to me to get to share this with you.